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Sawyer's Race For Research
Help Us Make a Difference
Our Story
A family fighting to save their child's life
We are the Burch family and in 2021 our son, Sawyer, was diagnosed with a rare metabolic disorder called Trifunctional Protein Deficiency. There are less than 100 documented cases worldwide and to our knowledge no one living past the age of 35.
Sawyer sees the leading world specialist and researcher, Dr. Gerry Vockley who practices at UPMC Children’s Hospital of Pittsburgh. Dr. Vockley’s life mission is to find a way to cure TFP. All of his research is succeeding! However, there remains a chronic lack of funding, as all extra government funding continues to go to COVID research.
Due to this deficit in funding, we knew we had to fight for our son. With the help of our church, friends, and family, we started Sawyer’s Race for Research. We are a registered 501c3 with 100% of our proceeds always going to Dr. Vockley and his research.
In the past 4 years, our Bowling Green community has helped us donate $425,000! And in September, we got the exciting news that OUR DONATIONS have assisted Dr. Vockley’s team to identify a pathway to a cure! As parents, we are thrilled with the hope of a cure, but this obviously entails more research and funding, so in 2025 we aren’t slowing down!
About Us
Sawyer's Race For Research is a nonprofit organization dedicated to saving children's lives by funding Trifunctional Protein Deficiency, TFP, research. Our goal is simple: to raise money to improve treatments and find a cure for this devastating disease. Since our founding, we've raised over $425,000 and have funded cutting-edge research projects. We rely on the generosity of our donors, volunteers, and sponsors to make it all possible. Help us make a difference and give the gift of hope to the children and families affected by TFP.
Our Commitment
At Sawyer's Race For Research, the health and safety of the children we aim to help is our top priority. We are committed to funding research that not only seeks to improve treatments but also ensures the safety and well-being of the young patients. Our dedicated team works tirelessly to ensure that every dollar donated is used effectively and responsibly. Join us in our commitment to making a meaningful impact on the lives of children affected by TFP.
