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Writer's pictureKatie or Taylor Burch

The Journey to Finding a Cure for TFP

Updated: Jan 2

The Journey to Finding a Cure for TFP At Sawyer's Race For Research, we are on a mission to fight for a cure for Trifunctional Protein Deficiency (TFP). Through our annual events, Run the Maple 5k and Tee Off for TFP, we are dedicated to raising awareness and funds for research in order to find a cure for this condition. Join us on this journey as we share examples, thoughts, and tips on how you can make a difference. 1. Participate in our events: One of the best ways to support our cause is by participating in our annual events. Run the Maple 5k is a fun-filled race that brings together people from all walks of life. The scenic route surrounded by maple trees in full autumn foliage creates a beautiful atmosphere for runners. By joining us, you not only contribute to raising funds for research but also show your support for those affected by TFP. 2. Spread awareness: Awareness is key in finding a cure for TFP. Share our mission with your friends, family, and colleagues. Use social media platforms to spread the word about our organization and the importance of finding a cure for TFP. You can also organize small fundraising events in your community to raise funds and awareness. 3. Volunteer your time: We are always in need of volunteers to help us organize and run our events. By volunteering your time, you can make a direct impact on our mission. From setting up the event venue to distributing water to participants, every task is important and contributes to the success of our events. 4. Donate to our cause: If you are unable to participate in our events or volunteer your time, you can still make a difference by donating to our cause. Every dollar counts and brings us one step closer to finding a cure for TFP. Your donation will go towards funding research, supporting affected individuals and their families, and raising awareness about TFP. 5. Be an advocate: Use your voice to advocate for increased funding and research for TFP. Reach out to your local representatives and urge them to support initiatives that focus on rare diseases like TFP. By advocating for change, you can help create a brighter future for those affected by TFP. 6. Support affected individuals and their families: TFP not only affects the individuals diagnosed with it but also their families. Reach out to local support groups or online communities to offer your support and understanding. By being there for them, you can make a positive impact on their journey. Together, we can make a difference in the lives of those affected by Trifunctional Protein Deficiency. Join us on this journey to finding a cure by participating in our events, spreading awareness, volunteering, donating, advocating, and supporting affected individuals and their families. Together, we can bring hope and a brighter future to those living with TFP.


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